Spina Bifida: Resource List

Books for Children

Ages 9 to 12

• All Kinds of Friends, Even Green!; by Ellen Senisi; Woodbine House, 2002
• Featherless; by Juan Filipe Herrera; Children's Book Press, 2004

Young Adult

• Spinabilities: A Young Person's Guide to Spina Bifida; by Marlene Lutkenhoff; Woodbine House, 1997

Books for Adults

• Children with Spina Bifida: A Parent's Guide; by Marlene Lutkenhoff; 2nd ed., Woodbine House, 2008
• Living With Spina Bifida: A Guide For Families and Professionals; by Adrian Sandler; University of North Carolina Press, 1997

Other Resources

Spina Bifida Association of America 4590 MacArthur Blvd., Ste 250 Washington, D.C. 20007 202-944-3285 1-800-621-3141 Email: sbaa@sbaa.org http://www.sbaa.org Its mission is to promote the prevention of spina bifida and to enhance the lives of all affected. SBAA provides many services, such as: Toll Free 800 Information and Referral Service, Bi-monthly Newsletter, Publications, Scholarship Fund, Public Awareness Campaigns, and Member Services.

National Information Center for Children and Youth with Disabilities P.O. Box 1492 Washington, DC 20013 1-800-695-0285 Fax: 202-884-8441 E-mail: nichcy@aed.org http://www.nichcy.org National information and referral center that provides information on disabilities, and disability-related issues for families, educators, and other professionals. Its special focus is children and youth (birth to age 22).

Compiled by Catherine Smith, MLS, medical librarian at the Family Health Library, The Children's Hospital, Denver, CO.
Published by RelayHealth.
© 2009 RelayHealth and/or its affiliates. All Rights Reserved.